Sister Wives’ Maddie Brown Reveals Newborn’s Sad Diagnosis

When Sister Wives’ Maddie Brown Brush and
her husband Caleb discovered they were pregnant with their second child, doctors informed
the couple that their unborn baby would be diagnosed with oligodactyly, a congenital
anomaly marked by the presence of fewer than five fingers on a hand. However, once they welcomed daughter Evangalynn
Kodi, the newborn was also missing a thumb and a toe, and one leg was missing a calf
bone and a shinbone. In addition, two of her fingers were fused
together. Doctors then diagnosed Evangalynn with a syndrome
known as FATCO. FATCO syndrome is an incredibly rare genetic
disorder that affects the formation of a baby’s bones when they’re in utero. There is no known cause behind the diagnosis,
and because of the disease’s rarity, it’s unclear how the Brush’s new daughter’s future
will look. When Maddie went in for a routine ultrasound,
her appointment, which should have taken less than an hour, lasted over two hours. Immediately, she knew something was wrong. She told People, “It usually takes about 45 minutes, but the
doctor just kept looking and looking. I was stressing out the whole time.” She recalls that the doctor finally met them
in his office and revealed to the pregnant mother that he couldn’t find all 10 fingers,
so he would be diagnosing her with oligodactyly. At the time, she was relieved because she
knew a lot more could have gone wrong. Still, when Evangalynn was born on August
20th, the doctors and the couple knew there were more issues. The couple was shocked when they heard the
official diagnosis. The TLC star told the magazine, “I was just sitting there trying to comprehend
what’s going on, having just had a baby as they are bringing in all these specialists. I was freaking out.” Maddie, the daughter of Sister Wives’ Janelle
and Kody Brown, told People that while she initially wanted to protect her daughter’s
privacy, she didn’t want Evangalynn to feel ashamed about her own condition. Instead, she wanted to ensure that her daughter
would feel proud of her differences as she gets older. 5Just as her family celebrates their differences
on the TLC show, Maddie wants her child to be proud of who she is and where she comes
from. While congenital limb deficiencies like extra
fingers or under-grown extremities aren’t uncommon in newborns, FATCO syndrome occurs
in less than one out of every 1 million births. There is little information on how the syndrome
is treated, but usually, surgery and amputations are used to help better the quality of the
child’s life. Maddie revealed that because Evangalynn is
still very young, the family will have to wait before they can start any kind of treatment
or surgeries until she turns 1 year old. By then, her body will be more developed and
the parents can decide on the next steps in the baby’s treatments. Maddie did open up in a recent Instagram post
about the situation, saying, “This is one of the hardest things that Caleb
and I have gone through and the decision to share almost as difficult, but after a lot
of consideration, we realized that it’s the best thing for our daughter and there is a
chance it may help other parents who may also be struggling.” Despite the diagnosis, the couple are still
thrilled to have a new addition to their family. Maddie continuously shares photos and videos
on her Instagram of her new baby as well as the couple’s son, Axel James, who is now 2
years old. “I don’t even know how to describe when I
first saw him or held him.” When it came to deciding on the new baby’s
name, they looked to their family for inspiration, telling People, “We were trying to think of a family name. [Caleb’s] grandma’s name was Eva, my mom’s
name is Janelle, and his mom’s middle name is Lynn, so we just put it all together and
did Evangalynn.” They also decided to select Kodi as the child’s
middle name in honor of Maddie’s father. It’s heartwarming to know that the Brush family
isn’t letting this diagnosis get in the way of letting Evangalynn live a full and purposeful
life. Check out one of our newest videos right here! Plus, even more List videos about your favorite
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Michael Martin

38 Responses

  1. Heavenly Father please bless this baby to have a full and perfect life. As you continue to manifest miracles and the parents continue to believe and walk-in faith.

  2. She was born on my youngest son’s birthday. He was 15 when your daughter was born. Maddie my son was born without any kind of birth defect even though he could have been because I was almost 41. After 40 there’s a big chance of having a child with Down syndrome. We’re blessed that Drew didn’t have it, but if he had it wouldn’t have mattered. We didn’t even have the test done beforehand because we are PRO LIFE. That’s my son. Not something to be discarded. Your daughter is just as perfect as my son. She’s different for a reason that only God knows and she’ll be a blessing to you and your family. Good luck and congratulations! 💕

  3. I'm wondering if they're related. I used to work in a genetics research lab and the rare diseases come up, when cousins marry.

  4. Congrats on your beautiful baby girl. Shes a blessing from God and I'm sure she will do great things in her life and love her and let her know everyday shes a blessing. Love you all .
    Hugs Maria

  5. She is precious in God's eyes! She will grow up loved and will change this world, as the unique, special person she was created to be! God bless this family!


  7. Aww I’m so sorry for this beautiful little girl….! I’m sure that won’t matter one bit in the long run! With technology today, she will be just fine. She is absolutely adorable! God Bless the Brush Family🙏🏼❤️

  8. the baby is beautiful. she is such a beautiful soul and thats all that matters. thats awesone they want her to know how special she is

  9. Awe her baby girl is so beautiful 💞
    I am so proud of these parents for not allowing there baby girl to ever feel shame of who she is.

  10. She really is so beautiful, no matter her condition. God does have a special plan for this little girl and her family. Congratulations Maddie and Caleb she’s so precious.

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